Your California Privacy Rights
California’s “Shine the Light” law permits users of the Website that are California residents to request certain information regarding our disclosure of Personal Information to third parties for their direct marketing purposes. To make such a request, please contact us at the email or physical address included below.
About The National Psoriasis Foundation
Serving its community through more than 50 years of patient support, advocacy, research, education and funding, the National Psoriasis Foundation, NPF, is the worlds leading nonprofit fighting for individuals with psoriasis and psoriatic arthritis. The NPF mission is to drive efforts to cure psoriatic disease and dramatically improve the lives of more than 8 million individuals in the United States affected by this chronic immune-mediated disease. As part of that effort, NPF created its Patient Navigation Center to offer personalized assistance to everyone with psoriasis or psoriatic arthritis. To date, NPF has funded more than $24 million in research grants and fellowships that help drive discoveries that may lead to more and better treatments and ultimately a cure. Learn more at www.psoriasis.org.
The National Psoriasis Foundation Selects Mypsoriasisteam As Its Official Online Community
NPF and MyHealthTeams partner to bring community, conversation, content and more to the 8+ million Americans living with psoriasis or psoriatic arthritis
SAN FRANCISCO August 18, 2020 MyHealthTeams, creator of the largest and fastest-growing social networks for people facing chronic health conditions, today announced its partnership with the National Psoriasis Foundation , a nonprofit organization with a mission to cure psoriatic disease and improve the lives of those affected. NPF has selected MyPsoriasisTeam, the MyHealthTeams social network for people living with psoriasis and psoriatic arthritis, as its exclusive, official online community.
Over 80,000 people diagnosed with psoriasis or psoriatic arthritis already go to MyPsoriasisTeam to find the people, support and information they need to better manage their condition. The National Psoriasis Foundation reaches millions of people facing psoriatic disease and produces a wealth of curated content to support people in their journey. Together, NPF and MyPsoriasisTeam will bring support and reliable health education information to the more than 8 million Americans living with psoriasis and psoriatic arthritis.
This new partnership expands on MyHealthTeams work with leading patient organizations, including the recently announced collaboration with the Global Vitiligo Foundation and a longstanding relationship with the PCOS Awareness Association.
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What We Aim To Solve
NPF is the leading nonprofit funder of psoriatic disease research in the world. Since it started funding research programs back in 2013, its impact can be felt across the psoriatic disease community. NPF’s goal is to find a cure for psoriatic disease and improve the lives of those affected.NPF to brings together critical stakeholders including individual, corporate and industry partners, and governmental funders alongside world class medical and research professionals around the world. It is through these collaborative relationships that new discoveries and breakthroughs will be found.Individuals with psoriatic disease are at higher risk for associated disease related systematic inflammation. This includes conditions such as heart disease, type 2 diabetes, hypertension, obesity, and mental health issues. NPF leads the way in prioritizing research into these associated diseases and how best to help address these additional high-risk conditions.
Prevalence And Impact Of Unacceptable Symptom State Among Patients With Psoriatic Arthritis: Results From The National Psoriasis Foundations 2019 Annual Survey
Alexis Ogdie1, George Gondo2, Joseph Merola3, Stacie Bell4 and Alice Gottlieb5, 1University of Pennsylvania, Philadelphia, PA, 2National Psoriasis Foundation, Portland, OR, 3Brigham and Women’s Hospital, Harvard Medical School, Newton, MA, 4National Psoriasis Foundation, Portland, 5Department of Dermatology, Icahn School of Medicine at Mount Sinai, New York, NY
Session Type: Poster Session A
Session Time: 9:00AM-11:00AM
Background/Purpose: Despite many efficacious therapies for PsA, many patients do not achieve remission. Ongoing disease activity leads to many downstream effects including diminished functional ability, reduction in social interaction and in some cases depression. Furthermore, depression may be associated with ongoing symptoms that can be attributed to PsA. The objective of this study was to determine the prevalence of unacceptable symptom states among patients with PsA and to examine the association with being in an unacceptable symptom state with depression and impaired social interaction.
Not being in a patient acceptable symptom state is common in this US-based population of patients with PsA and is associated with significant decrements in social activity and increase prevalence of depression. Being monitored by a dermatologist or rheumatologist was associated with an increased likelihood of being in a patient acceptable symptom state.
Table 1 Patient characteristics
Disclosure:A. OgdieG. GondoJ. MerolaS. BellA. GottliebArthritis Rheumatol.
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Sharing Of Personal Information
We do not share or disclose your Personal Information to third parties except as set forth below:
|With consultants and vendors for the legitimate purpose of providing customer support and marketing assistance.|
|Contact information||With credit card processors for the legitimate purpose of processing credit card transactions in connection with the donorâs and subscriberâs contract with the NPF websites.|
|Contact information||With our business partners, with your consent, for the legitimate purpose of providing you with products or services tailored to your interests and preferences.|
In addition, we disclose Personal Information if legally required to do so, if requested to do so by a governmental entity, or if we believe in good faith that such action is necessary to: conform to legal requirements or comply with legal process protect the rights or property of NPF prevent a crime or protect national security or protect the personal safety of users or the public.
In the event NPF becomes the subject of a bankruptcy proceeding, whether voluntary or involuntary, the NPF or its trustee in bankruptcy may sell, license, or otherwise dispose of the information retained by NPF in a transaction approved by the bankruptcy court as is legally required.
In the event NPF is or may be acquired in whole or part by a third party by way of merger, consolidation, or purchase, we may disclose and transfer Information to the third party and any prospective acquirer.
Npf’s Commitment To Privacy
The National Psoriasis Foundation respects the privacy of each individual who contacts us. We are grateful for your support and the critical role you play in helping us continue our valuable work. To protect your privacy, we provide this Privacy Notice explaining our information practices and the choices you can make about the way your information is collected and used when you engage with NPF or visit the NPF Websites where this Privacy Notice is linked . This Privacy Notice applies to information collected by NPF both online and offline.
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National Psoriasis Foundation Doubles Number Of Researchers Studying Psoriasis
National Psoriasis Foundation will double the number of researchers studying psoriasis and psoriatic arthritis while also cutting in half the number of people who say these chronic conditions are a problem in their daily lives as part of its new five-year strategic plan and mission to cure psoriatic disease and improve the lives of those affected.
“This is the most aggressive, results-driven strategic plan the National Psoriasis Foundation has undertaken,” said Pete Redding, vice chair, National Psoriasis Foundation Board of Directors and chair of the NPF Strategic Plan Committee. “It puts the person living with psoriatic disease at the center of all of our goals and demonstrates the Psoriasis Foundation commitment to improving the lives of millions of people with psoriasis and psoriatic arthritis.”
The Psoriasis Foundation will accelerate scientific research to cure psoriasisthe most common autoimmune disease in the country, affecting as many as 7.5 million Americansand psoriatic arthritisan inflammatory joint and tendon disease that occurs in up to one in three people with psoriasisand work to dramatically better the health of people with psoriatic disease. The Foundation will accomplish these goals by:
To learn more about the NPF strategic plan, visit www.psoriasis.org/strategic-plan.
Association Policies Regarding Disclosure Of Personal Information
NPF, like many other non-profit organizations, occasionally makes available only our contributor names and postal addresses to companies, predominantly other non-profit organizations. NPF will only share or sell the Personal Information of its donors when the donor has given NPF specific permission to do so by checking the opt-in box on online and offline forms.
Names/addresses are provided on a one-time basis therefore, these companies will not have continued access to your name and address unless you respond to them directly, which you are not required to do.
NPF may provide aggregate statistics about our customers, sales, traffic patterns, and related site information to reputable third-party vendors, but these statistics will include no Personal Information.
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About National Psoriasis Foundation
The National Psoriasis Foundation is the world’s largest nonprofit organization dedicated to educating, serving and empowering people with psoriasis and psoriatic arthritis.
The Psoriasis Foundation does not receive any government funding. The National Psoriasis Foundation’s primary source of income is through donations from individuals and businesses. Other income comes from special fund-raising events, miscellaneous sales and interest income.
The National Psoriasis Foundation partners with corporations whose goals and objectives strategically align with the Foundation´s mission to improve the quality of life for people who have psoriasis and psoriatic arthritis. By working together, both organizations are able to accomplish their goals more effectively and efficiently. This work includes:
- Educating patients and medical professionals
- Ensuring access to treatment
- Promoting awareness and understanding of the disease
- Building a grassroots network
Where To Address Your Questions Or Complaints
NPF welcomes your questions, comments, and concerns about this Privacy Notice, the practices of the Association, and your dealings with the NPF Website. Please email us at , or if you are a member, at . Alternatively, you can write to us at:
National Psoriasis Foundation6600 SW 92nd Ave., Suite 300Portland, OR 97223
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Our Commitment To Children’s Privacy
NPF produces websites, including psoriasis.org/our-spot as well as the “Youth” section of NPF’s website , that are intended for use by children, including those under the age of thirteen, and the adults in their lives. Protecting the privacy of children is especially important, and for this reason we have adopted certain policies and procedures to help do so.
Personal Information about children is not collected for marketing purposes, and it is only disclosed to third parties when necessary . Additionally, we do not allow third-party companies to advertise to Our Spot users. We intend to keep the Youth Sites free from direct advertising.
If you have questions or wish to send us comments about our protection of childrenâs privacy, please send an e-mail with your questions or comments to or write us:
Our Spot6600 SW 92nd Ave., Suite 300Portland, OR 97223-7195USA
Monitoring Of Information And Cookies
We monitor customer traffic patterns and site usage to help us develop the design and layout of NPFâs website. We may also use the information we collect to occasionally notify you about important changes to the websites, new services or features offered by NPF, and special offers and information we think you will find valuable. If you would rather not receive this information, please contact us through one of the channels identified in “How to Correct or Update Information” .
We collect Information, by way of a cookie, to help us evaluate how our sites are being used. A cookie is a small uniquely identifiable text file that is stored on your machine. A cookie collects Information that is used for statistical purposes and does not identify you in any way.
Most web browsers automatically accept cookies, but you can change your browser settings to prevent that. Even without accepting cookies, you can still use most of the features throughout the NPF Websites.
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The National Psoriasis Foundation Seal Of Recognition
How our Ocean Soothe Gel and Lotion became recognised with the National Psoriasis Foundation
On the 22nd of January 2020, Abundant Natural Health received the National Psoriasis Foundation Seal of Recognition for our Ocean Soothe Gel and Lotion . This is a BIG DEAL to us at Abundant Natural Health. Not only does this highlight our products as being safe to use for people with psoriatic disease but aligns us with an organisation which supports people affected by psoriasis in REAL ways.
What is the NPF?
The NPF reaches 2.5 million people globally and is the largest non-for-profit organisation supporting research into psoriatic disease. Established 54 years ago in Portland, Oregon, this organisation leads the fight for a cure, providing advocacy and patient support, education, and funding for research. The NPF is led by a Medical Board which comprises of experts in the field of psoriatic disease, formed to provide clinical direction, champion education to medical professionals, advise on standards of care, and support the NPF efforts to find safe and effective treatments for psoriatic disease. In recent years the NPF has contributed over USD$20 million to support research into psoriatic disease.
What does the NPF Seal of Recognition mean for us & our products?
1. Sufficiently and safely aid to manage psoriasis, including symptoms such as redness, itch, plaques and dryness.
2. Do not irritate or contain chemicals known to irritate psoriasis.
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Use Of Personal Information
The Personal Information collected may be used by NPF for the purpose of providing you with the content you request, operating and improving the NPF Websites, providing a positive user experience, accepting your donations, and delivering the products and services that we offer.
We may also use the Personal Information we gather to inform you of other products or services available from the NPF or to contact you about your opinion of current products and services or potential new products and services that may be offered. We may use your contact information in order to send you e-mail, postal mail, or other communications regarding updates at the NPF, such as newsletters, psoriatic disease information, event and programmatic information, and additional listings which may be of interest to you.
We may also use it to send you information about third-party products and services that match your interests and preferences, if you opt in for this communication. The nature and frequency of these messages will vary depending upon the information we have about you. In addition, at the time of registration for certain services, you have the option to elect to receive additional communications, information, newsletters, and promotions relating to topics that may be of special interest to you.
We do not provide your name and address or email to outside parties, except as described here.
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Residents Of The European Economic Area
If you are located in the EEA, you may have certain rights under European law with respect to your Personal Information described below.
Controller of Personal Information. NPF is the Controller of your Personal Information. NPFâs primary place of business is 6600 SW 92nd Ave., Suite 300, Portland, OR 97223.
Processing. The following table provides information required by the GDPR relating to our use of your Personal Information:
|Contact information, including name, address, e-mail address, and telephone number.||Your consent to collection and use. Also as necessary for the performance of a contract.|
|Purchaser information, including credit card number, contact information, and billing information.||Your consent to collection and use. Also as necessary for the performance of a contract.|
|Demographic information, including age, preferences, gender, educational degrees, ethnic background, interests, and psoriatic disease specific information.||Your consent to collection and use. Also as necessary for the performance of a contract. And for the legitimate interests of NPF in analyzing this data for purposes related to NPFâs activities and mission.|
|Technical information, including your IP address, browser type, domain names, access times, and referring website addresses.||NPFâs legitimate interest in authenticating subscribers and optimizing website performance.|
Your Rights. Subject to applicable law, you may have the right to:
Collection And Use Of Personal Information
What is Personal Information?
Personal Information means any information relating to a natural person who can be identified by reference to an identifier such as a name, an identification/account number, location data, an online identifier, or to one or more factors specific to the physical, physiological, genetic, mental, economic, cultural, or social identity of that person.
Non-Personal Information means information that is about you, but does not identify you specifically. If you do nothing during your visit to the NPF Website but browse, read pages, or view content, we will gather and store Information about your visit that does not identify you personally. Below are specific examples of the types of Information we collect:
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Retention Of Personal Information
We will retain the Personal Information we gather about you for as long as necessary to fulfill our contracts with you and to fulfill the other purposes described in this Privacy Notice. We retain indefinitely certain anonymized information we gather about visitors or subscribers for the legitimate purpose of performing website analytics and providing use of the NPF Websites to all visitors in an efficient, practical, and relevant way.
Personal Information You Post
If you post any Personal Information in public and/or social network areas of the NPF Websites, e.g., in online community forums or chat rooms, the Personal Information disclosed may be displayed to other users of these services and may be collected and used by others over whom we have no control. NPF is not responsible for the use made by third parties of Personal Information you post or otherwise make available in public areas of the NPF Websites and communities. If you remove Personal Information that you have made public on NPF Websites and communities, copies may remain viewable in cached and archived pages of the NPF Websites or if others have copied or saved that Personal Information.
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